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Old 01-06-2010, 02:36 PM
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mrsD mrsD is offline
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Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
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There hasn't been much done in studies for your type of PN.

Yes I have PN too. (and spina bifida occulta --which may be linked to my GI defect).

I just have to be careful and not do big athletic things, and watch what I eat. I can get torsions and obstructions which I did alot in my 20's. After being diagnosed, I discovered how to protect my GI tract. I just can't eat alot of fiber or gassy foods.

I started with PN in my early 30's which became severe during pregnancy. It was a thyroid problem that caused that. My hands are better now, but my feet still have burning moments, and some arthritis tacked on due to age. Some may be insulin resistance. I have to walk with a walking stick in the winter...to balance myself, on slippery surfaces. But I am mostly okay and mobile for the rest of the year. I am old now, so it seems like a lot, but most people have other stuff they deal with.

Since the hereditary neuropathies have not been studied deeply, except for the one trial for one type of CMT using Vit C which was only marginally effective, there is not much to recommend for you. Make sure you have a good level of B12, and Vit D. Make sure you eat enough EFAs (Omega-3's) since low levels of these impact the myelin sheath.This is for the rest of your body etc. And try to stay alert and not blame everything on one problem, since other things may come up and be separate.

There is a website for MSers and supplements, which is pretty extensive. But I don't know how much would pertain to your situation.
http://www.msrc.co.uk/index.cfm?fuse...how&pageid=772
Over the past 10 yrs this list for MS has become very aggressive. I can recall times when supplements were pooh poohed for them.

If I come across something I will be sure to bring it here. You can count on that.
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