Raina,

Given your family history, you may have hereditary issues. They told me I had hereditary, but they did not test....later, I was diagnosed with autoimmune disease. Then the hereditary was disregarded. Now they feel it is autoimmune.

I have Sjogren's with PN, and ALSO myopathy, dysautonomia and numerous other systemic issues. I get IVIg. I think they should test to see if you have a gene marker if possible. (There are likely genes yet to be found, Kitt can fill you in on this.)

If it is inflammatory, they may be able to treat it. Even if it doesn't improve, it may prevent progression.