Ladies,
I am new to this forum but not to RSD/Causalgia. Reading your story and then your comments, I am ready to cry. They say I have RSD/Causalgia in my lower extremities and Fibromyalgia in the rest of my body. I asked if the RSD could spread, they said no. I have all of the symptoms that you have mentioned, for years I have been silent, and somewhat neglected by the doctors, even though all of the tests came back positive, they did not treat this and I believe it spread. I do not believe I have fibromyalgia, I believe it is all the RSD and the fact that I have permanent peripheal nerve damage in my right leg would confirm a disruption in the CNS. I guess awareness is the key for this disease.
I do have severe tremors throughout my body, there are times I actually wake my husband up out of a dead sleep because I have shook so bad, there have been times where I have woke up and could not move or feel my body. I am ashamed to admit this, I had a severe leg spasm while sleeping, I have a 10 pound shitzu, that I sent flying across the room and into the wall, (about 3 feet) when I got my leg under control she was standing on the floor looking at me elusive, I felt awful. Now, she sleeps on top of my head (problem solved). The memory and trying to focus to concentrate is also very difficult however I do blame that on some of the medication.

I guess we just really have to hope and pray that they recognize this as a systemic issue and not just about the pain. The pain is awful, but it is really just one of many symptoms. Thanks for sharing

God Bless, Jeanie