Hi Semendua,

I agree with Ally that MG doesn't really cause pain, but the compensation that the working muscles have to do does. The areas where you experience pain are exactly the same areas where I have pain too. I also have had terrible posture for ages, like Ally says, and find it really difficult to hold up my body. I'm sure it's the cause of my lower back pain.

I had developed this habit of keeping my shoulders very upright, almost like I've been hung from a hanger, to help with my breathing. I always keep my left hand on my hip whenever I'm standing for long periods of time. I don't really know why I do this, but it just makes things easier for whatever reason.

It's so funny how we do things so unconsciously to assist ourselves with our moment-to-moment existence. I guess the weakness can be that insidious and sneaky; that it bypasses our sense of computation until hinesight puts the pieces together.

The 'burning' pain you describe is a bit iffy. I have had burning sensations in the palms of my hands and feet, but I'm pretty sure that wasn't related to MG but something else. I still occasionally get the burning sensations in my feet.

Thanks for the info. re. the vitamin D. I agree that so many people with immune system issues/chronic illness are low on it. I also take the D3 kind, but I'm not even sure if I have a deficiency (but I prolly do). I take it 'cause of the prednisone.

Your sx really do sound like it, especially with the DV late in the evening. Ages ago (like two years), when the fatigue that you guys had also described was killing me and I found myself wanting to be in bed all the time, I'd be reading my thyroid bible (I truly believed at that time that my thyroid was the culprit in my feelings of sickness), and I'd come across the part that talked about other diseases associated with thyroid disease.

I'd get to the part about MG, which was barely talked about, and I'd never heard of, and it briefly described the sx. One was the DV. I'd have one eye closed while reading because I couldn't see clearly without doing this- everything would be double! A thought occurred to me that maybe this was what was wrong- but I was like, 'nah...couldn't be!'

It didn't mention anything about fatiguability. It did mention 'slurred speech,' which I didn't have at that time. So go figure that the DV disappeared and my most persistent sx, slurred speech, is the one I'm willing to take prednisone and imuran to get rid off today!