So i finally urged my neuro into an appointment.

He somehow had no idea i was hospitilized from the crisis a few weeks ago..

But its been a month since my last plasmapheresis and it only lasts about a month for me, so i figured out thats whats making me so weak. And Otp w my neuro he doesnt think the pred. is going to work. So im going to see him tomorrow and see whether or not to stay on the pred. or do plasmapheresis again.

Im thinking the plasmapheresis is going to have to happen, because a month in and, the pred. isnt working hardly atall.

Im sitting here, after taking a nap and my arms so so fatigued im hurting just writing this. My breathing isnt good, its hard to take a deep breath in, and its just not the normal way of breathing.


I hope i dont get there and hes like, oh you look good, just go home.

I want him to see how bad i am right now. Yet time will only tell.

Hope you all are doing well.