Tyson,

I'm going to be damn serious right now, ok?

Please read this and anything else you can get your hands on.

http://www.myasthenia.org.au/html/treatments.htm

And you ABSOLUTELY HAVE TO bring up the fact that you are on both Pred and Accutane. A call to your pharmacist will let you know what effect Accutane has on Pred - maybe. The two are NOT supposed to be taken at the same time!!!! Even one day may be too much (you said you were only going to be on Accutane for a little longer, which can do lots of harm).

And you may be on too much Pred.

WARNING: Going off of Pred too quickly can cause an adrenal crisis. You can die from that.

Something is not adding up. Maybe switching to Imuran or another immunosuppressant would help but those can take a LONG time to kick in too.

The bottom line is that you need help now. And if someone doesn't refer you to a pulmonologist, they are idiots. You have to have some kind of objective marker for your breathing so your neuro can SEE that.

Stand up for yourself. You know your body and how you are doing. And be completely honest with your neuro (not that you wouldn't)!

Annie

I hate when doctors say we look good. I want to FEEL good. Ask him if his eyesight is so good that he can see your neuromuscular junction . . .