Quote:
Originally Posted by sugrkiss
So today at my nuero appt., he offered me IVIG. I am currently on a lot of Mestinon, and 20 mg of Prednisone (which apparently I'm maxed out on, cause I got even weaker when I tried to taper higher). I still don't drive, and I have a significant amount of weakness while on my dose...and so much more weakness during the last half hour and first half hour of my next dose. The thing is, while I would love to feel normal again, and actually be able to go places and like take walks again...I am used to feeling this way now...and the idea of IVIG, makes me nervous. Any personal experiences with it, good or bad, would be appreciated.
Thank you,
Jessica
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Hi Jessica,
I've only been diagnosed since September. But I started out withfive days of IVIG. Didn't feel really good after. But once my Mestinon dosage was increased to 60mg I felt much better. Had IVIG for three days in November. Felt really good after. I always have breathing problems. I go in for three more days of IVIG on Monday. They give me Benedryl and Tylenol before the IV to ward off any bad reactions. Sometimes I get a headache. But the IVIG for sure, makes me feel stronger.
Ellen