Alice, Thanks for bringing this up. Way back when, doctors used to be more interested in the "science" of disease instead of the "drugging" of disease.

After my B12 deficiency, I went to a couple libraries at a local university to read up on it all. Thomas Addison, a doctor, who is best known for discovering Addison's disease, was that kind of doctor. He also discovered pernicious anemia. There are these amazing descriptions in old books of the clinical presentation of diseases that are awe inspiring. Paying attention to the details makes all the difference. His description of a B12 deficiency would make anyone exhausted. It's detailed, long and a run-on sentence that spans about two paragraphs! And he wrote it five years before he died, still interested in science. No wonder he discovered two diseases. He was paying attention.

And now there are those snippets of info in medical books that many medical students see as "the only knowledge" about a condition or disease. As if what it's like to live with a disease can be reduced down to a paragraph or two or even a page or two.

And when doctors don't listen or don't think about things like MG patients having muscle pain, it gives us other kinds of pain (mental, emotional)!

I don't have the energy to go to libraries anymore but it is often worth it.

Annie