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Old 01-08-2010, 07:12 PM
keep smilin keep smilin is offline
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Join Date: Aug 2009
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15 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
15 yr Member
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Quote:
Originally Posted by Lynns409 View Post
Yeah, I think that I had a five day trial. And it is kind of strange to try and live a normal life with wires coming out of your spine. And don't go off of the fentanyl completely- maybe cut your patch down a bit slowly?

But with the time that you do have, I think that you can make a good decision. It is overwhelming, but think about the things that you CAN do, and the places that you can notice a difference. Make a meal and try to notice how long it takes for you to get tired or feel pain. Is this better than how you normally feel? Is your skin less sensitive? Is the temperature in your affected area better? I promise that you don't have to go out jogging to figure out whether or not this will work for you. Just take a deep breath and try to focus on what you are feeling.

Oh, and keep a journal! Write down how you are feeling and what you are thinking. That way when it comes time to make this decision you can accurately remember how you were feeling.

I don't really remember too much about my trial- but I definitely remember subsequent revisions, and it does hurt. They're poking things into your spine after all! And this is a new feeling and experience- sometimes when you don't know what to expect it's worse than when you do know what's coming.

In science we usually like to change one variable at a time- so I'm a bit worried about stopping a medicine and having the trial all at once. It's probably best to stay on the meds and just focus on the trial. After all, what if you feel crappy and have more pain from stopping the meds, but attribute that feeling to the trial? You want to be able to have a semi objective view of this trial run.

Any questions, just holler.

Lynn
Rae~

Sorry that your experience was "trying" at best.. I remember how sore my back was after mine was inserted..I had it for 5 days which was not as long as I wished in order to test drive it fully.. but I think the Dr.'s afraid of infection as it is open ended... As far as the patch, I am not and was never able to use it as I couldn't take it off from my skin cuz of the sensor issue..but I think you should ween yourself... how is he to know anyway?? Dr.'s and people say things from the cuff and probably needed to say at your descretion... see how you feel slowly taking yourself back...go easy the next few days..you have been thru a procedure and you need to becareful....

Let us know how you are doing and lets chat before you have this trial removed okay???? KS
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"Thanks for this!" says:
Rrae (01-08-2010)