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Old 01-10-2010, 06:34 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
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15 yr Member
cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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I have myopathy and mine is painful. I also have autoimmune crap. I would have that checked out. Have your ANA run several times per year.

I wonder tho, if your issues could be caused by autonomic dysfunction.

If my doc told me my muscle pain was due to Fibro, I would hit him over the head with his reflex hammer. I have had Fibro used as an excuse not to run testing that would have revealed my autoimmune issues. This went on for a decade. Now I am sicker than a dog.

Fibro is not treated, but you are simply offered a tricyclic or pregabalin, (Lyrica) which some insurance won't pay for and then you get Neurontin. Fibro is being sold to the public, while in the medical community, it is a dismissive diagnosis, designed to keep you out of a specialists office, and in the family practice arena. Don't buy the commercials, or fancy adds in Arthritis Magazine.

I had Lyme Disease with an EM rash and was told I had Fibro. I had an ANA thru the roof and + Sjogren's biopsy and some buub told me I had Fibro. Fibro has no diagnostic criteria but 18 pressure points that hurt on every one because they are tendon insertions. What other medical disease do we diagnose by default? By a lack of findings? None. You can get Lyrica ordered for your neuropathy....same thing. A Fibro diagnosis won't get you anything you do not have access to now, other than a few raised eyebrows from docs who don't buy it. Big Pharma invents diseases....they want to sell lots of drugs. The DSM which defines psych disease has quintupled in size in 10 years. Is it because we have more psych disease....nope....everything is a disease now, to be treated with some antipsychotic like Abilify, Seroquel or some SSRI, like this year's new one, Pristique.

If you feel physically ill, pursue a diagnosis that is the result of clinical FINDINGS, not a lack of them. That is science. This is how a scientist looks at disease....we find things and classify them...not name a lack of findings.

I think a lot of really sick people are walking around diagnosed with Fibro, and it will take years for them to get a proper diagnosis.

Also, if you have neuropathy, that can cause all kinds of pain, not just burning. I have profound neuropathy and very, very little burning, but profound bone and muscle like pain. It all depends on what fibers are affected, and how you are hardwired.

Have you had a good rheumatological work up? It does not take a rheum to do this....an ANA and ENA is a start. You could also request an autonomic battery.

PN comes with many autoimmune diseases. I would keep an eye on your ANA.....and check out dysautonomia.

Dysautonomia is a real diagnosis, with clinical findings, among them pain and exhaustion. There is a clinical syndrome with Dysautonomia. It is caused by small fiber dysfunction or neuropathy.

Try to get fresh air, exercise and eat well...also examine any meds you are on....but, you know your body. If you don't feel well, persevere until you get answers.
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Last edited by cyclelops; 01-10-2010 at 06:50 PM.
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