Thread: Is it too late?
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Old 01-10-2010, 07:33 PM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by RNcrps2 View Post
Have i missed my window of opportunity? I started with RSD in entire arm-had scs trial but even though it helped i was afraid of making the wrong decision. I would ask what if it caused it to spread or that i couldn't run or that I couldnt take any more pain than i already was having. Fear. Fear of making the wrong choice- i am waiting on a list for possible ketamine. Now RSD has spread to my feet,lower leg and other hand. SCS only works on sympathetic mediated pain(smp) and not on symp. indep.pain(sip). My Dr. still says it will help lessen the pain but not to the extent that it would have before spreading. I have read dont do surgery once it is sip because it can cause spread-but it already has spread. Now my meds have been changed again and i wait. momof4
Hi RN-I'm so very sorry yhou have had spread. Can you get a 2nd opinion regarding going further with the perm. SCS? I have full body RSD-wasn't diagnosed for 4 years.
A Mom of 4, caring nurse-I so hope you can get into remission. Have you done any research into HBOT. That's my next move after 15 years of this nightmare. My Dr. just built two clinics with HBOT in each one.
Please know I'm thinking of you and hoping for the best possible outcome. Your friend, loretta with soft hugs
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