Quote:
Originally Posted by DanaM327
Hi Everyone,
I'm new to the site, so hello! My dad was recently diagnosed with MG and I've been scouring the Internet trying to find as much information as possible about MG. I've been reading this site and I'm SO HAPPY to have found it!
I'm just wondering if anyone else has had a Myasthenic Crises and had to be put on a ventilator to assist with breathing? How was your experience?
Basically my dad's story is that in August he had knee surgery. He recovered, came home and started to get really tired and have trouble breathing at night. We took him to the ER and he was tested and diagnosed with MG.
He's been recovering ever so slowly and beginning to wean off the vent. He has had 2 rounds of plasmapheresis, 1 round was 7 treatments, the second round was 5 treatments. The first round didn't work that well, but the second one was great! He is currently on Prednisone, and beginning to transition to Imuran. He also takes Mestinon, as I'm sure most others do!
I'm so sorry if my post doesn't make sense, or if I just rambled, I'm a newbie  I'm just not sure where to start, but want to learn more. Thanks! |
Hey! Welcome to the site. It sure is helpful. I've got a question for you. How was your dad diagnosed? If he got diagnosed the same day he went to the er I find that really weird. For usually it takes months-years.
Yet I've had a crisis, and while in my week and a half stay rebuilding enough strength to walk on my own. I was on oxygen my whole time there. Yet is your dad on it at home? I'm not sure how that works.
I'm glad the second round of plasmapheresis went well, I myself have had 14 sessions. I hope the pred. Is working for him, as for some it doesn't.
Glad you found this website!