Yep, I know exactly what you're talking about, Heidi. In my case, it's only with my left foot and I had that sensation years before the pain in my toes, so it wasn't about getting worse for me. I've been told that Morton's Neuroma can also cause this sensation, but a doctor can easily diagnose that by squeezing the ball of your foot in a certain place--it will cause intense pain if that's the problem.

I guess not much of that is helpful to you except to know that it's a common feeling for people with PN.