Quote:
Originally Posted by Pat 110
Hey Dana,
Welcome to the group! I'm sorry to hear you Dad has gone through so much, but it's wonderful he was diagnosed so quickly. The neuro hospital sounds great. I too had plasmapheresis, but only before my thymectomy and it worked well. Because of problems with other meds, I only take mestinon since 01. I can take 60 mg every 4 hours, 3 hrs. if I need it. I adjust my dosage to how I am feeling and what my symptoms are. Sometimes I have terrible side effects and if it works, I'll just rest. Does your Dad have any other symptoms? Not that the breathing issues aren't enough! Sounds like between you and his doctors, he is in excellent hands. Glad you found us and please ask anything at all. We are a very friendly supportive bunch here. 
Hugs,
Pat |
Hi Pat,
Yes, dad has had a number of the other symptoms. He has had a drooping eye, slurred speech, trouble swallowing, all over muscle weakness and fatigue, at some times not being able not being able to lift his arms. The most pressing symptom has been his breathing, since it was so bad it lead to ventilation. His spirits are good though! I even told him about this site, and he's anxious to get out of the hospital and started reading and learning on his own about MG.