Quote:
Originally Posted by sugrkiss
So today at my nuero appt., he offered me IVIG. I am currently on a lot of Mestinon, and 20 mg of Prednisone (which apparently I'm maxed out on, cause I got even weaker when I tried to taper higher). I still don't drive, and I have a significant amount of weakness while on my dose...and so much more weakness during the last half hour and first half hour of my next dose. The thing is, while I would love to feel normal again, and actually be able to go places and like take walks again...I am used to feeling this way now...and the idea of IVIG, makes me nervous. Any personal experiences with it, good or bad, would be appreciated.
Thank you,
Jessica
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have already read and met prople who were put onto pred with no improvement omly problems.
everyone is different but the control of your treatment is for you to control do not forget that .did it help or did it not .
these drugs are body destroyers when they are not working.
