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Member
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Join Date: Apr 2008
Location: Seattle area
Posts: 695
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Member
Join Date: Apr 2008
Location: Seattle area
Posts: 695
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Misdiagnosed
Because I began to experience some new and disturbing symptoms, I saw a neurologist at the MS clinic a while back. Friday I had my MRI (head and neck) and today was my follow-up. The good news (if there is any) is that the MRI revealed I do have a brain (the doctor has such a wonderful sense of humor, doesn't he?) and that it looked pretty clear of any signs indicating MS. He said the c-spine looked excellent. He also said, however, that what I have been experiencing for years is NOT peripheral neuropathy . . . that I have been misdiagnosed. For now I have an operating diagnosis of either transverse myelitis, or neuromyelitis optica (NMO) or Devic's Disease.
Not MS (yet) . . . but still not good. I will be seeing a neuro-ophthalmic specialist some time during the coming month.
I will be starting on Tegretol soon.
Anyone here ever deal with this?
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We live in a rainbow of chaos. ~Paul Cezanne .
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