Hi Swmnupstrm, I'm sorry you are having these symptoms. You have come to a good place. Your symptoms are what I have had, and I have had RSD 15 years. But there are others disorders also. I was misdiagnosed for 4 years. There is a nuclear med test-a x-ray with dye-that confirmed my hand rsd diagnosis. It was a sports injury orthopedic group. Are you in a college town, with major sports teams-like we live in Phoenix Arizona now- They have golf pro's, basketball, baseball, hockey, football thus, all kinds of specialists, very good Drs. I flew back to Eugene, Or (they had the summer olympics trials) track and field. T
We had the RSD Trials for Ketamine here in Scottsdale at the Mayo Clinic.The Cleveland Clinic is well known. You can call RSDSA- the national organization for RSD and get Dr. referrals, give your zip code and get the closest RSD suppport group. We had the annual RSDSA meeting here this spring of '09 It's so important to get a good diagnosis and you can always go back 'home' and continue treatment.
If you have RSD, the physical therapy you already have had may have desensitized your feet. Even though I didn't have a correct diagnosis, I did start physical therapy immediately after my breast surgery. My left shoulder froze up-(it was really RSD) but am thankful for the pt. I have full body RSD now. All the therapy I've had has been good for keeping mobile. I have one hand that is partially paralyzed because of delayed diagnosis and treatment.
My toes started curling up off the floor and my Dr. had me in the swimming pool 86 degrees, counter curling and swimming, and in 4 months, they were touching the floor again and I was walking-That's been about 3-4 years ago.
We are all different, what works for one doesn't work for someone else, please get a diagnosis as soon as possible. NO ICE Reasearch any procedure- you don't want this going full body. Wish you the best. A website I learned a lot from is rsdrx.com then turn to puzzles. It's a list of 146 puzzles or questions with Dr. Hooshmands answers. He is retired now in Florida and turned a lot of clients over to another RSD Dr.
If you give the forum where you live general idea, they can tell you if there are experienced RSD Dr. nearby. Hope the best, loretta with soft hugs