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Originally Posted by RNcrps2
Have i missed my window of opportunity? I started with RSD in entire arm-had scs trial but even though it helped i was afraid of making the wrong decision. I would ask what if it caused it to spread or that i couldn't run or that I couldnt take any more pain than i already was having. Fear. Fear of making the wrong choice- i am waiting on a list for possible ketamine. Now RSD has spread to my feet,lower leg and other hand. SCS only works on sympathetic mediated pain(smp) and not on symp. indep.pain(sip). My Dr. still says it will help lessen the pain but not to the extent that it would have before spreading. I have read dont do surgery once it is sip because it can cause spread-but it already has spread. Now my meds have been changed again and i wait. momof4
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Hi RN Momof4, The Fear you talk about is 'part of RSD' A part of our brain, called the Limbic System, controls depression, causes anxiety, among other things. Before RSD Anxiety wasn't a part of my life, but it is now. My RSD Dr. is a neuro, pharmacologist, and psychiatrist. I take lorazepam, an antianxiety med. It truly keeps my emotions more at a level pace. Being on the correct meds is critical to feel balanced, lowered pain days, contol blood pressure etc. Because RSD is an autonomic condition, our circulation, blood pressure are affected.Because of all these parts to keep calm and balanced, having a Dr. up on all of these is very important. I hope you the best of health, your friend, loretta with soft hugs
