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Old 01-12-2010, 11:47 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Ally, What should be done is BOTH full PFT's and an ABG.

They should do the basic spirometry plus diffusing capacity and MIP/MEP. That very same day they should do the ABG. These results combined with how you are doing clinically give the best picture of what is going on and to what degree.

There's a large spectrum from "okay to dead" with MG and these test results! A doctor, who isn't such a sarcastic wench, would know this and take it all into consideration.

Don't drive yourself crazy, the doctors are doing that well enough for you. Just ask for those tests when you are not doing well and see what happens.

Maybe it's time to redo the antibody tests too so that you have more than one "false positive" test result (just kidding).

Annie
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