Hi Kim, 15 years ago I got RSD following surgery. After a year of pt and massage therapy I had a year remission. then the RSD moved to the opposite shoulder. more therapy and another year of remission. Then injured my hand,water skiing and went full body after that. I wasn't diagnosed for 4 years, but my neuro said I've had it since that 'surgery' I did have jolts, jerks, spasms body wide for a long time. Went on 3200 mg neurotin to get rid of them. After gaining weight, I asked to gradually go off of neurotin-hated the weight gain and the feeling from the drug. I've been off a couple years and didn't get the symptoms back, so I'm very grataeful for that. I'm on less meds now than 5 years ago. I sleep 10 hrs. now verses not getting to sleep till 5-6 a.m. Have a very good Dr.. So in some ways I'm better now than 5 years ago.I'm completely mobile except one hand. So have a lot to be grateful for. Hope you have some improvements too. It's a tough thing to deal with day in and day out. As for pain meds, I'm on 4 vicodin a day instead of 6, and mentally better. My Dr. is neuro, pharmacologist, psychiatrist, so I've had good care. Hope the best for you, loretta with soft hugs