Nicky, If you want to become even dizzier with information, read this.

http://www.ihop-net.org/UniPub/iHOP/gs/91954.html

Or this.

http://www.neurology.org/cgi/content...act/62/10/1894

There's a lot of info out there, but who's pulling it all together?

If you want more info, just do this search: myasthenia gravis RyR1

Alice, I did not really get better on steroids (they make me feel nutty too) but whether that was due to the dose or length of use who knows. I know they are useful but I doubt if they are good for everyone too. Hope you are doing ok.

Annie