Well,

Finally after all these months

I got an MRI - normal apart from mild sinus issue and enlarged lymph nodes

Saw the neurologist today

diagnosis

Cluster migraines

apparently (according to him) you can get them in you gums/face temple etc...his diagnosis is based on the fact that

1. I tend to get attacks in the evening and at night
2. The duration of the attacks (between 10 mins and an hour)
3. The fact i pace and cant stand still when i get them
4. I ram my ear into the pillow when i get them
5. I cant lie down during an attack
6. My mother has had them (but hers were mainly round her eye)
7. The twinges i get through the day can also occur

so i have new drugs - will keep you posted

will keep you posted