Originally Posted by Joanmarie63

Welcome to the best place for us MGers.

I was DXed in Feb 1991 so you and I have had this for a long time. I went into remission for many years and only recently started being effected with MG again. I came out of remission after 17 years and I don't know if it's because we were doing so good for awhile that now that it is flaring up it seems worse.

I only take mestinon as well, but am thinking of trying Plasma exchange {if I can find a Dr to do it} The mestinon doesn't work as well for me either.

Talk with your Dr and see if you can get plasma exchange or IVIG but from what I have read about the IVIG you need to start that quickly after being DXed so I don't know if it would work for people like you and me.

Please let us know what your Dr says and feel free to post and ask whatever is on your mind, between us all someone can answer.