Quote:
Originally Posted by Joanmarie63
 Picking chin up off my keyboard....
No, I have never heard of the medication you wrote about but if my Dr. wanted to give it to me I would slap him up side his head for even thinking of it. LOL
Remember YOU have a say in what meds your Dr. gives you, if you don't want it, than you don't have to take it and that includes upping your Pred.
I hope your weakness starts improving soon, without increasing your pred. |
LOL!!!! A slap on the head would be justified for all the side effects that he listed, haha..
I have issues with prednisone (it works ok, just don't like the side effects), so myfortic was another option that he offered last time I went to him. Prednisone has helped alot, I just don't like taking it (or any other medication for that matter). He thinks myfortic is better than Imuran, but I haven't seen/heard about anyone else using it for MG. The website for it lists it as having the same ingredients as Cellcept, and for it being used for autoimmune diseases. He is a good doctor (specialist), goes to conferences, and sees many people with MG. He has also been good about letting me make the decisions. He just doesn't have any options that don't include some kind of prescription. This med just sounds dangerous, but Imuran, Prednisone, and any other Rx option we have to choose from all have their own nasty side effects.
Thanks! I hope you are strong, and become stronger each day.
Kristy