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Old 01-15-2010, 05:21 PM
momzpeachy momzpeachy is offline
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Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
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Thank you so much for all of your replies and prayers. I finally got on the computer today and feel like typing. I've had a rough week and havent felt like doing anything. Talking to anyone has been difficult. I had a breakdown the other day and just shut down. Wednesday was awful. I spent pretty much the entire day crying. My Doctor's office called me (not the Doc of course) and she told me "no more ketamine". I can no longer have the ketamine boosters and I was removed from the inpatient list. I was really upset because I was just weeks away from doing the 5 day inpatient. I was hoping that would work. I did have a reaction to the ketamine. I am feeling better now and I can swallow once again. It did feel like an allergic type reaction. It also seemed like the RSD got worse which she said can happen. It was an adverse reaction and it just doesn't seem to work for me. Nothing does! I'm allergic to EVERYTHING and that's not a joke...I mean everything! I can't take most meds out there and when I did the allergy testing it showed that I am allergic to everything. They couldn't believe it. Morpheine is the only thing I can take and I was on it for almost 3 years and found that it can progress the RSD. I was taken off of it.

Currently I'm taking 2400 mg neurontin daily, 60mg cymbalta, and something for headaches that I can't remember the name off hand. Not much really. That's it. I'm in lots of pain and feel like crap. Today was a little better. The weather got a bit warmer so it helped. I'm just really really having a tough time. My face is so swollen and red. Actually my whole upper body is. Now my skin has also changed alot and is so shiny and pulling tight. It looks horrible. My skin always feels sweaty and gross. I wouldn't wish this on anyone.

Can anyone help me with what can I do to feel better? Any techniques. I want to stretch but it's hard. I so badly want to exercise but can't. 5 minutes of exercise puts me into a bad flare. I have gained so much weight. I'm flat out miserable and now I don't know where to go with this. I don't want to live the rest of my life this way but I don't have a choice. Some days I do wish I'd go to bed and not wake up or when I do wake up..all this would just be GONE! wishful thinking.

Take care everyone..I will hopefully keep posting..I need to vent and all of your support will help...thank you

I will try and respond to those who pm'd. I can only sit here for little bits at a time. If you want to talk by phone..please send a phone number. I can call you. Thanks again!
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"Thanks for this!" says:
bobber (01-16-2010), loretta (01-17-2010), SandyS (01-17-2010)