Thanks Kate. I appreciate the thoughts and prayers. This has been by far the hardest issue I've dealt with as a parent. My youngest has had a number of surgeries and tough behavorial issues before we discovered she has ADHD. All of that seems easy now.

I believe narcolepsy is what you are refering too. Once my daughter is able to fall asleep, she generally sleeps through the night until I awaken her the next day. She could easily sleep 12 hours a day. I purchased a product by ZEO to track her sleep - so I know how much light, deep and rem sleep she gets and how often is wakes up. She always tells me she doesn't sleep well and I think that is because of the about of REM sleep she is getting 30-35% each night. Her mind seems to be constantly going. A lot of her difficulty falling asleep is also turning off her mind. Some of it is anxiety and some of it isn't. I just can't help thinking that if we could improve quality of sleep, her fatigue would lessen and then perhaps her memory would improve.