Originally Posted by kpRN

Hi. I am new to your forum, although I have been reading the posts for some time now. You see, I was quite sure that "something" was wrong as I have been experiencing pain, numbness, weakness & tingling in my upper extremities since 1996. It all started in 2 fingers, on my right hand and over the years has spread to both upper extremities, to include the fingers, hands, and arms up to the shoulder. I actually saw a neuro back in 1996 but went home empty handed. Saw another neuro about 2 years later but again was told nothing was wrong with me. So, I have endured this discomfort for the past 14 years. Finally got mad, saw a new neuro and told him I needed him to be "my hero" and keep looking until we found an answer, no giving up!! After 3 MRI's, evoked potentials, 14 vials of blood and an EMG/NCS we have a diagnosis: mixed axonal and demyelinating peripheral polyneuropathy. Finally validated on my 50th birthday!! Part of me feels happy because I feel vindicated, I have my "I told you so" moment. Another part of me is apprehensive because I don't have a clue as to what the future holds. Looking to you experts for wisdom and advice. I have seen a lot of good information shared on this forum and hope you can enlighten and encourage me. Feel free to ask any questions that might help you, help me!! God bless.....