Draggin', I'm in the same boat -- but, can't take most of the meds or treatments. You really don't sound like you are taking all that much Mesty -- I've heard of quite a few taking 180 every 3/4 hours. But, if it is making you worse, then NOT good.

I would avoid Prednisone at all costs, IF you can -- HORRIBLE side effects. IF I could tolerate it, IVIG would be my treatment of choice -- and I would opt for once a month -- that's about how long the effects last for most folks.

You might also want to ask about Ephedrine Sulphate -- see if you could take it WHEN you need to go somewhere -- it isn't something you would want to take ALL the time. It should give you temporary strength and energy. You need a prescription and a CHECK-UP prior to taking this type of med.

My exacerbations are always due to illness, stress, or exposure to chemicals/pesticides. Have you figured out what is "setting you off". Can you avoid the triggers?