Hi Draggin'
I have generalized MG since May 2007, treated with Mestinon, Pred and Cellcept, IVIG and PLEX without success until we reached 75 mg pred per day. I went down to 5 mg per day in August 2009. I had to have eye surgery for cataract on one eye but the other was done 6 years ago thus, before my MG and my father had it also...I'm also treated for glaucoma most probably due to Pred, but no moon face nor weight gain.
I'm unfortunately now in a relapse period, consequence of a pneumonia vaccine, which, should I have known, would have skipped...
I had to reincrease Pred (now at 50 mg) and started PLEX once every week.
My neuro wants me to go again to 75, as it worked last time but I'm very reluctant, but if no improvement is obtained within a couple of months, I would not have any alternative as, at 70, I don't see myself embarking for a thymectomy...
Did you ever had a CT scan for your thymus? If the results are positive, that look like a solution, but even in that case, Pred might be necessary after surgery?
Maurice.
For your Mestinon, did you try 60 mg every 3 hours?