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Old 01-17-2010, 06:28 PM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by sailmaker510 View Post
I remember seeing someplace that people with RSD/CRPS should not be placed on steroids for things like itching.

Does anyone have any information on this?? I would greatly appericate any links or help on this as his dermotoligist wants to try steroids for the swelling/itching/blisters.

The severe swelling/redness/itching in upper body and the massive blisters on the foot that developed in November showed a major improvement after a lumbar block. However, it seems that attempting to walk on his feet increases the swelling/redness/itching on upper body and legs. He has RSD/CRPS in R - knee, both feet and it looks like it is spreading to his upper body (RSD/CRPS since 3/2006).

Thanks to all the members for your help and support. This is one awful disorder and I pray each day for relief for all who have this.
Respectfully,
carrol
Hi Carroll, I'm sorry for you and your loved one having RSD. I've had it for 15 years-full body now and internal. I read just a few days ago, someone on the forum talking about a cream made by a compounding pharmacist. Of course the Dr. gives the ingredients. If I can find it, I'll private message you. But I do remember ketamine and a cream. I'll look for it. I've had the blisters and they are awful. Be sure and keep them clean. My Dr. had me sitting in warm- not hot- water several times a day. Then softly clean them. The water with epson salts, draws out the infection. It's extremely important to keep the infection under control. Take care of your self, your loved one treasures your love and help. My husband has been wonderful-more in the later years after he did research. My daughter and son in law are also wonderful. Soft hugs for you and you loved one. loretta
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