Quote:
Originally Posted by momw/rsdchild
I have left amazing doctors before because of the office managers, schedulers or nurses. I would go through the doc - make an appt if you have to and tell him how you feel and what is going on. If he can't or won't get her on the ball then you need to run not walk to another doc! It is so sad that some people just don't care to try to understand what chronic pain is and how it affects people.
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It actually maddens me when I hear and see examples of others who don't care about us or our disease... better yet what really kills me are those who are "players" and pretend to care about us, chronic pain ..RSD people we open ourselves right up for others to jump on and become part of our lonely, sad world..but they who think they want to in our picture really only show when they want to..when it is conventient for them..when all along.. we get zero break and our needs don't change!! No guess work here... we need constant support and lots of love..so not our fault!! Although we suffer insurmountable amounts of pain, daily..our perseption has not changed and we know when we are getting kicked to the curb.... heart wrenching living daily as we do then to suffer the heartbreak of knowing we have lost the support we thought we had!!
take care, KS