Hi

Hope you are all okish. In the UK we are having very bizzare weather at the moment and my pain/ spasms have gone out of control.

My left arm is now pointing sideways and down my back and REALLY hurts, my right has twisted more than normal whilst my legs have been kicking, twisting and generally misbehaving all day. Also I have lost all control of my neck and can't open my mouth or swallow at the moment and keep grimacing (unintentionally). I'm also getting really bad jerking spasms that I haven't had in months. Even lying flat the spasms are throwing me around the bed - almost like I have been electrocuted.

and it REALLY hurts - both the dystonia pain and the RSD pain. It's even worse than normal!

Does anyone know if there is a link between weather/ air pressure and RSD/ dystonia symptoms worsening?

and any ideas how to treat it? I have an exam on Tuesday and am really struggling with trying to study for it whilst my arms / legs flail or twist and the pain just makes concentration impossible.

(and I am embarrased to go out with an arm randomly sticking out and jerking everywhere.)

*and I seem to be in a visious cycle of severe spasms which set the RSD of because the jerky spasms normally involve my limbs flailing/ twisting, which makes the pain far worse - which sets off more spasms...*

Thanks
Frogga xxxx

PS I already take muscle relaxants - diazipam, benzhexol, baclofen and something else but I can't remeber it - begins with t.