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Old 01-18-2010, 01:49 PM
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alice md alice md is offline
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Join Date: Sep 2009
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10 yr Member
alice md alice md is offline
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alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
10 yr Member
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Quote:
Originally Posted by DesertFlower View Post
Alice,

I agree with you. With MG you have to over-exert yourself in order to be productive sometimes.

I also work two days a week and recover on the days between. Although I don't have any verified breathing problems, I can feel a slight difficulty in breathing on occasion and my heart beats hard, if I overdo it.

The one difference is that my neuro thinks I should be able to work full time and have a "normal" life by taking Mestinon. I have told him that I would like that, but it just doesn't work as much as I try. The two days a week of work seems to be my maximum. I have tried 3 days of work per week and I end up in bed and unable to do regular things (shower,cook meals, comb hair, think clearly, etc...) even with the Mestinon. I explained this to him and he told me to take as much Mestinon as I can without having the overdose symptoms.

It just doesn't work like that. I have a maximum tolerance for Mestinon which allows me to work 2 days per week and I can't get more work out of the Mestinon than that. And I have tried! I would love to work more!
so it's time to change your neuro. he doesn't sound like one that understands either you or MG.
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