Quote:
Originally Posted by made it up
Hi Laura,
Personally I think the decision of when to have DBS is a personal one and only you can answer the "when" part.
Compliance on your part and a healthy positive attitude which you seem to have from looking at your posting is also (I think) desirable if not a necessity.
I had DBS 6 yrs ago and will be forever grateful for the normality it allowed which I'd up until then thought was gone for good.
One of the group members here Charlie founded a website called yahoodbs...whatever. Help me out here Charlie! You might get some help from them esp. if you're in U.S. which the majority of the members are.
Lee
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Go to Yahoo groups and search DBS surgery.
ALl of us are unique in our disease and its treatment.
By all means get a second opinion.
try mixing your sinemet (crushed up) with orange juice and figure out how to take it in hourly doses, This works extremely well for my friend Nikki. It is labor intensive and a pain to do, b ut she has NO offs like when she took it normally.
Charlie