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Originally Posted by glenntaj
--they can look for the granulomas of sarcoid in the small-fiber nerves from a skin biopsy, and parts of the sample can be stained with Congo Red to look for signs of coiled amyloid proteins. But this probably has to be specifically requested by the doctor involved; I don't think it's automatic with the electron microscopy.
In my case, we went back to look for amyloid in the preserved samples from my first skin biopsy some months after it was first analyzed--negative, fortunately.
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The neuro that diagnosed me is pretty much done with me or so I get the feeling. He never gave me a diagnosis, I got it from the report once I requested a copy. I think I need to push on and find a doctor that specializes in this area. I just think if I went back to the neuro and asked him to do a bunch of tests, he would boot me out the door!!
Praise God that your samples were negative for sarcoidosis. That must have been a huge relief!!