My husband has it. He stareted symptoms around 1999 but it took until 2001 to find out what was going on. He received IVIG for about 2-3 years. He believes it did not help but it did stop the progression. The IVIG was not easy, it makes you feel bad for awhile and just when you do start feeling better it is time for another dose. Some brands of IVIG seem to be worse then others. My husband stopped the IVIG because of money issues. His job changed insurance and the new insurance would not cover it all. It was costing us $1000 every 4 weeks. It cost around $7000. I had to fight very hard to get our 1st insurance to cover it it( took me 4 months and hrs. of phone calls). He seems to be holding well without the IVIG now. He still has lots of tremors, drop foot, and his fine motor skills are not great, but the IVIG did stop it. Good luck.