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Originally Posted by RNcrps2
My RSD has spread hands, arm, shoulder, scapula, feet, leg. Taking Lyrica, cymbalta, lidoderm patches and oxycontin. Spreading continued so Dr. stopped oxycontin and started Methadone. I was upset about narcoticsl, but FINALLY my pain has decreased, less sensative, not turning purple constantly, walking is easier! I am so happy. I guess i have to just except the fact that i have RSD and i may need to take medicine that I dont like but that helps me. I still do epsom salt baths or foot baths which really help. Hope this helps someone else. momof4
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Hi Momof4, I'm happy for you. I understand how you feel about meds. I just wanted to say I attended the RSDSA annual meeting this past spring in Scottsdale, AZ where I live. We had 4-5 RSD Drs. & Scientist. And they definetly were pro Methadone.
I have full body RSD-now 15 years with internal involvement,pelvic region. We need all the help we can get. My pain was increasing because I would be awake all night-ambien not working. Dr. put me on a 200 patient trial study and it worked, so was able to decrease the pain med a little. So grateful to sleep again.
Hope the best for you. your friend, loretta with soft hugs
