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Member
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Join Date: Nov 2006
Location: UK
Posts: 830
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Member
Join Date: Nov 2006
Location: UK
Posts: 830
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Hey
Hey michael, nice to meet you!I also have full body RSD.
I haven't slept for more than about 2 hours at a time for abour 5 years - and I don't think you can get used to it. Pain wakes me up and keeps me awake and because of my dystonia i get woken up my muscle spasms/ muscle spasms throwing me out of bed (always a fun one!) or nowadays - muslce spasms getting me stuck through the cot sides on my bed (that happens far too much..).
Anyway - like Artist I find the best thing to do is have LOTS of pillows... and if you can to tilt the bed (mine tilts upwards/ downwards and is generally a walking talking bed).
Fatigue - I mine swings from being in the background (like over the summer holidays I spent alot of time in bed/ resting and the fatigue calmed down) and since being back at uni I feel like a functioning zombie...
lI think every RSDer has sleep problems - but they also seem to be different sorts/ different intensitie.s
Take cAre
Frogga xxxx
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