Originally Posted by momzpeachy

Hi everyone

I am an emotional wreck right now. I thought I would post here but can't type much..my hand is colder than ice right now.

Yesterday I started going down hill and fast. Every half hour I needed to go to the bathroom, I felt so dizzy and was having chest pains that would come and go. I started having trouble talking and when I talked, I would have trouble breathing and swallowing then chest pains with my heart racing. I have had no appetite and don't want to drink or eat anything. I went home and checked my blood pressure again. It was 149/93 and then checked my temperature which was 99.7. I was so out of it also. I couldn't think straight and I was talking weird and writing backwards. I called the Doctor's office and of course it was late on a friday and everyone was gone. I got the nurse who was there and she told me I should go to the ER and they would page my Doctor. She said it is the weekend though..which we all know that NOTHING happens on a weekend. She told me to call my primary Doctor to see if they have a suggestion as well regarding my symptoms. I called my primary and the Doctor got on the phone (my chart has me flagged as a "special case") ..sheesh but anyways the Dr said something is definitely wrong and I really should go to the ER. She told me that I could go to a local ER instead of driving to philly but she can guarantee they won't touch me with a ten foot pole and just send me to philly anyways.

My husband wasn't to keen on driving to philly on a friday night knowing nothing will be done. I layed down and fell asleep. I slept from 8 pm to 9 am this morning. I woke up quite dizzy and tired. I took my blood pressure and it was 148/90 and I'm still running a temp of 99.7. Still having trouble swallowing and have no appetite. When I stand up, I get dizzy and chest pains especially if I move and also talk. It's so weird. I have terrible neck pain and it's going down my arms. My hand is so cold and purple.

I don't want to rush to the ER and sit all weekend in a hospital. I have a Dr appt scheduled for Wednesday morning but I'm not sure I can wait that long. I'm thinking I should go to the ER first thing Monday unless things get much worse over the weekend.

I don't know what to do really. I've been crying and so mad. I don't want another surgery which I forsee in the near future. My cpine MRI shows a disc pushing right into the spinal cord. 2 Discs are buldging and it looks like the spinal fluid may not be flowing right. Just peachy! With RSD ..surgery is NOT good. I am so upset because I have been through hell! I had 2 major surgeries in one year..been through every treatment under the sun and now have RSD in the worst stages which they also think is causing osteoporosis which is probably why I have these spine problems. I can't win. I really can't. Does anyone know where I can get a body transplant?

I'm so tired of all this. I honesly don't know what to do and should I go to the ER or just wait it out.

Your friend and RSD support...

momz