I am so happy to hear that she is doing better, I know that feeling when your child's pain is somewhat under control My daughter is having a good day today as well. No one would ever think that you would aggravate her condition I apologize if I came across that way. I know how you feel watching your daughter suffer every second of every day...You would try anything to take her pain away. I have traveled a lot to good doctors as well. Once you find one it is very difficult to leave and try to find someone that takes such great care of your child. My prayers are with you and your daughter. If she has facebook page, there are several girls her age that talk back and forth on RSD Really Sucks Dystrophy, just have her put RSD in the search box. My daughter has several lovely young girls that she has met through this Facebook sight. There are three or four different ones. So have her check them out. She can go to the discussion board and click on the one that says Kids with RSD I believe. Good luck and keep us posted.
Sandy
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Originally Posted by momw/rsdchild
We just got back today from Dallas having spent all week getting my daughter IV treatments of ketamine and lidocaine to take down her pain. She is doing much better now. Of course her pain is still there but not near as bad as it has been. This doctor is amazing but he is so far from us now that we have moved. We just hate to switch. We have been dealing with this illness for 3 1/2 years now so while I am new to this site I am not new to RSD. Sadly. Thanks for your encouragement and welcome. By the way, the doc says its fine to use the TENS unit. They have used it on her in the hospital many times but I never pain attention to where they put the leads. That's all I was looking for as far as lead placement. I'm sorry if anyone got the wrong idea. No intention of doing anything to aggravate her condition further that's for certain! It's good to be home now. Let's just hope her pain relief continues for a long time!
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