Alice, I am a new member today and I am glad you are here. I am a 68 YO male with MG symptoms and they are getting worse lately. My Neuro only advised me to take Mestinon and if that was not successful, start on Prednisone but after reading this thread I am very reluctant to do that in light of H1N1 and anorther issue I have.
I have researched minimally invasive Thymectomy for nonthymoma patients and I have three surgeons willing to do it. I have read lately that most surgeons who do this are saying anybody with a positive MG antibody test and showing early symptoms should have the surgery - you can go home the next day and 80+% have some improvement with 30% of those in complete remission and the remainder with little or no meds. My Neuro was reluctant because of my age and time for improvement( can be years) but my parents both lived to 88 and 96 and I have a good chance for improvement.
Have you had a Thymectomy and if so was it successful?
Do you think it is right for me?
IV IG? Thanks for your input!