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Member
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Join Date: Oct 2009
Posts: 474
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Member
Join Date: Oct 2009
Posts: 474
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Thanks for all your support and encouraging words. Your all so nice, and for that I thank you.
I don't really how I ended up w another crisis when I didn't even excersize. I did everything I was supposed to.
1 thing I will tell you is that my regular doctor messed me up. I had a sinus infection last week, she stupidly gave me clarithromacin, saying she looked it up on the sheet that says whether myasthenics can have or not, and it wad not
on
there. Well guess what, it was. I had been taking that for a week, and it was slowly depleting my lungs, luckily I went to the er. Just goes to
show you how little even a DUKE family doctor knows about mg.
I was doing so well, and here I am
again, laying in the hospital bed. Not fair.
I have a baruim xray test tomorrow to see if I nerd surgery on something near my esphogus, that happened during my thymectomy w scar tissue because now I feel like everything gets stuck down by my heart.
I had an anxiety attack last night, along with a little
breathing crisis, I had too many visitors yesterday. This ***** from respritory was being so rude, jammed a needle for a blood gas test in my wrist and it really hurt for the next 4 hours. Then took my bipap away.
But I love the attending neuro this time, he thinks the attack was not all in my head.
Anyway- I have plans to go skiing next mont, and with all my plasmapheresis sessions done, do you think I will be able to?
I'm on cellcept and back up on my 60mg of pred.
Hope you all are well, and thank you again for helping me out. Sorry for the ranting!
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