Hi, sorry this going to be a long post!
Still haven't been diagnosed yet, i'll be having a few tests done the end of February. Based on your experience do you think that i have MG?
It all started back in Feb 2008, my eye started drooping out of the blue on and off for a month, i was a bit worried but i put it down to wearing mascara! Then in November 2008 i was having a drink with a friend and i picked up my glass and had a drink but i couldn't swallow. I had to spit out the drink into my glass. It was ok after that and then on New Years night 2008 i had problems swallowing drinks all night. It stopped again after that, not completely, i couldn't drink hot drinks. Then in May 2009, i couldn't drink or eat anything for a week. I got really scared and i lost nearly a stone in weight. At this time i was so thirsty that i had to eat ice, for some reason i found it easy to eat the ice so i started putting a glass of water into the freezer and waiting until it got really cold and i also found it easier to swallow. At this time i had a Bariam swallow test and they found i had a small haitus hernia. The doctors put me on Zoton fastabs which neutralise acid. I've recently seen a neurologist and he said that a haitus hernia wouldn't cause swallowing problems. A few other things i have noticed is that i find it easier to eat and drink in the morning, for example i can drink a full cold glass of water in the morning and only one mouthful at night. When i eat a meal my neck feels like it is very tired and i have to flex my jaw to try to relieve it. The last year has been the hardest year of my life, from losing weight, to not being able to go out to eat or drink. If i have MG can you tell me is this the way my life will be for the rest of my life. Will i ever be able to eat out again? I just get really scared when i think that things will never change. Thanks for reading