Spkar,

First things first....relax a bit. You WILL be OK. Getting diagnosed with neuropathy is always a shock. It opens up so many possibilities and some of them seem so dire, but, you know what??? It all settles down a bit, and, you do learn to live with it. It is a lot like an unwelcome guest at your home, except it isn't leaving, and your only choice is to make some kind of peace with it.

I see by your location you are potentially in an area endemic for Lyme? Have you had a good work up for this?

I had Lyme, at one time, and it is possible that it contributed in no small way to what I have now....which is a poorly defined autoimmune condition with some similarity to Sjogren's without the + SSA SSB.

Here is some info on C ANCA, keep in mind, not every one has the worst case scenario.

http://www.unckidneycenter.org/kidne...rary/anca.html

http://jasn.asnjournals.org/cgi/content/full/13/7/1953

I am on IVIg, but I have something different, and they monitor my kidney function every month, and if it goes to pot, I can't have the infusion. I have had a low GFR in the past. It is fine now.

On pain....opiates can have a stimulating effect preventing sleep. Often the meds we take can be our worst enemy.

Oh, and you can be in either forum. I am in several, and they all fit!