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Old 01-26-2010, 07:48 PM
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
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Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
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I just wanted to give everyone an update on my CCSVI experience. I'm having second thoughts about participating in the trial at Stanford run by Dr. Michael Dake. But it's not because I think this is baloney! I decided that if I get this treated I would like to do it close to home for post-procedure monitoring purposes. So I sought out help in my home area. I saw a neuroradiologist last week and he took a look at the MRV scans I had done at Stanford. He definitely agreed both of my lower jugular veins were blocked quite significantly--so now a second doctor has seen the problem, and this is someone who was technically more objective because he had only recently been reading about CCSVI and was new to the game. In fact, I kept asking him if he was sure he saw the stenosis in the veins and he kept saying yes! He and I both agreed there is a correlation between MS and CCSVI but we don't know if CCCVI causes MS yet. But he was very open to fixing the problem since it was so obvious. Anyhow, we may be talking treatment soon. I will keep you posted.
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