Hi Natalie!

I too missed this thread until tonight. Wow! How interesting -- thank you for giving us the 'scoop' on the whole procedure. It sounds like a logical deduction that needs to be fixed, MS or not. A couple things you mentioned, hit home with me...the low blood pressure.....taking a long time to "get going" after getting up for the day, no matter what time. Could you answer a question for me? Do you or did you have alot of pressure in your head? Early on before my "official" diagnosis of MS, that was something I kept mentioning to every doctor. It felt like my head was going to explode -- not like a headache, just pressure. Occasionally I would even have a 'goose egg' to go along with the pressure. It seems to have let up in recent years but I wonder if it could go along with the CCSVI?

Please keep us informed in whatever you decide. And I certainly hope there will be someone interested in this here on the East Coast.

Take care......