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Old 01-28-2010, 12:08 PM
Jimking Jimking is offline
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Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
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catra121, sorry to hear another human being with RSD is going through this! I'm a husband of wife with RSD and she struggled the same as you are now. She kept her condition secret from me for almost 2 years and that was 8 years ago. It got so bad for her because she was rejected by several doctors many who diagnosed her. She told me everything what was going on then I got involved and saw the treatment she described first hand and was shocked!
My advice would be to gather support from family and friends and have an advocate go to the doctors with you and speak up for you if possible. The other is vigorously find another doctor and keep doing this until you find one that will help control the pain. It is very important to get the proper treatment now. Be very careful about invasive procedures. Be leery of any doctor that wants to cut. Check to make sure you do not have trapped nerves because there is the possibility trapped nerves can mimic RSD.

My belief, why doctors act the way they do, is because of the nature of RSD, the DEA and insurance companies. Doctors fear the DEA, insurance companies will only allow doctors to do so much with limited resources dictated by the insurance company in which doctors have to abide by in their contract. Even though these are my opinions there is no doubt doctor's behavior is predicated on other forces other than the patient.
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"Thanks for this!" says:
catra121 (01-28-2010), dreambeliever128 (01-28-2010), loretta (01-31-2010)