The neuroradiologist I saw seemed so unconcerned about stents in the veins (I asked about arteries v. veins) that he was almost blasé. He looked at the problem and said "I've never paid attention to this before but it looks pretty easy to fix." He puts stents in the brain/head all the time, in both veins and arteries. And my problem is lower jugulars which are even easier to deal with (not in a tight small space high up). He said that you need to keep an open mind when it comes to the venous system and that doctors know much more about arteries than they do veins. He found the idea of CCSVI intriguing enough to keep exploring with me.

Judy, I have never had pressure problems in my head. I did have headaches with my first MS experience, though. Your problem with the goose egg sounds so unusual! Who knows, it could be related.

I do know that at doctor at a NYC hospital is putting together a trial to test and treat CCSVI. He has already treated one person under the radar--I don't know his name but do know he will announce this year. A vascular guy at Georgetown is about to begin a trial too. More and more people are popping up on forums having been tested on their own, and sometimes even treated. In early Feb. the results of a blinded test to look for CCSVI in the first 500 MS and control patients (the total examined will be 1700) at Jacobs Neurological Institute at the University of Buffalo will be released. Word has it that the results are "proof positive" and quite amazing. There may be a huge explosion of interest when this comes out.

If you want the latest info that is not too overwhelming in terms of length and multiple posters, try plugging in Facebook CCSVI into google.

I will keep you posted on what I decide to do.