Magnate
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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Magnate
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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Joanne the criteria for prescribing IVIG used to be easy to find?
Not so easily found now tho.
Things that make the case tho are as follows in terms of test results:
Whole slew of blood work - basic metabolic, full antibody blood workup, specialized autoimmune work ups, sometimes even cancer and other workups. Before I was diagnosed? I had about 15 vials taken prior to a preliminary diagnosis, with a recommendation of a spinal work-up for specific immune 'markers' and also blood work for anti-body action/reactions to some components in IVIG. So, at a date about 5 weeks after the first bunch of vials? Got a spinal work-up done in the neuro's office and then toted the vial to a near hospital for even MORE blood work [about 8? I think] which was sent off to area labs and the Mayo Clinic for testing.
Other tests that contribute to diagnosis are the trail of EMGs and NCV's [nerve tests -one with the probes the other with the topical sensors]; MRI and Cat scans w/&w/o contrasts to rule out skeletal issues such as spinal nerve compressions or who knows what else?
So, essentially Blood work for dietary deficiencies such as Calcium or B-12 or excesses such as B-6, nerve tests, X-rays, MRI's, cat scans, and spinal fluid tests. Leave it to your doctors to coordinate the tests, explanations and all w/the insurance companies....Always tho TRY and get copies of the tests being done? Just so YOU know what's being done. Depending on the conditions and diagnoses? There is a 30-60% chance it can help. - All everyone has said so far is right? - I'll post more later as you'll have even more questions! Take care in the meantime? Hugs to your husband too! - j
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