Ally,

it's amazing how very few pulmonologists understand what you have just explained.

it should have been so obvious that a patient with respiratory muscle weakness will find it hard to breath out against resistance, but I hear of so many MGers that are given a CPAP for sleep apnea without understanding this simple fact.

I know that even when my pulmonologist put me for a few hours on an autoCPAP, in order to see what my real resistance and pressures are (and not the presumed ones, that everyone before him thought they should be), it was so hard for me to breath, even though I was able to maintain a good CO2 and O2 level throughout the entire test , that it was such an enormous relief when he put me back on my bipap (with the proper pressures) after that.

and it is a bit of a comfort to know that I am not the only one that has experienced that. even if theoretically it makes sense.

this illness is such an untravelled land.

alice